News
Dual Realities of Dementia Care: ‘He’s There, But He’s Not’
Your name Your email Subject Your message (optional) Let’s explore a facet of dementia care that often leaves caregivers with conflicting emotions: the co-existence of presence and absence. Dementia is a reality where two diametrically opposed things can be true – he’s there, but he’s not there. I’ve heard that so many times as a […]
Navigating Dementia Truths: Why Persons Living with Dementia May Seem to Lie
Your name Your email Subject Your message (optional) A few years ago, I wrote a series of blogs here about common Alzheimer’s and dementia behaviors. It was well-received by our readership and We Are Dementia Strong podcast listeners. The behaviors and symptoms included things like: I’m here today to help navigate what could be an […]
Beyond the Clock: How Long Can My Loved One Be in Hospice Care?
Your name Your email Subject Your message (optional) I get this question a lot: “How long can a dying loved one be in hospice care?” Unfortunately, I don’t get this question early enough in the life-care planning process from many Patient Advocacy clients. (Although, in my experience, I always try to find a way to […]
Board-Certified Patient Advocate: A Guide & Protector of Autonomy
Your name Your email Subject Your message (optional) I’ve been inspired recently. That’s not to say life has been fun or easy. If you’ve followed this blog for a while, you’re likely familiar with my dual personal and professional roles as a Board-certified Patient Advocate and care partner to my life partner, Brian. While guiding […]
Journeying with Compassion: Person-Centered Care for Dementia
Your name Your email Subject Your message (optional) We’ve certainly discussed person-centered care before. Also known as person-focused care, it’s a care philosophy that empowers the individual(s) at the center of the treatment and compassion required in the aging process. That is, your loved one – in good health or bad. Person-centered care for dementia […]
Navigating the Shadows: 7 End-Stage Dementia Care Strategies for Caregivers
Your name Your email Subject Your message (optional) My Brian’s eyes would play tricks with him when was still living at home in earlier stages of his Alzheimer’s and vascular dementia. Especially at night. The shadows cast from the moonlight out our window over Tampa Bay, which normally looked so peaceful, caused hallucinations and paranoia […]