Step 3 of Life-Care Planning Taking Care of Those Who Take Care of Us
I know this part of the journey well because I’ve walked it myself for decades and in several different capacities. Step 3 of life-care planning calls upon the care recipient to honor those who give selflessly on their behalf: care partners and the entire care-partner team.
In recent months, we’ve been diving into the life-care planning steps highlighted in my new book, “Because I Love You: My Book About Me.” So far, we’ve discussed:
- Step 1 of Life-Care Planning: Let’s Get to Know Each Other
- Step 2 of Life-Care Planning: Tools for Living Your Best Life
As you’ve likely guessed, the goal is to plan A LIFE WORTH LIVING for our elders and their care partners. There are many moving parts to a great life-care plan. Some of them can be quite complex, monotonous and overwhelming – gathering and organizing financial and legal documents; and coordinating care, doctor visits and end-of-life plans. Others call for personal reflection and documenting life’s interests and wishes, essentially drawing a map for the best quality care.
Step 3 of life-care planning is on the more personal side – but to benefit the care partners. Let’s explore!
Honoring Our Care Partners: A Personalized Approach to Life-Care Planning
As the primary care partner for my husband, Brian, who lives with Alzheimer’s and vascular dementia, I’ve experienced the emotional highs and lows. The challenges and triumphs that come with being a caregiver are familiar as old friends.
I know what it’s like to feel underappreciated and that my needs are secondary. That’s part of the sacrifice. But it doesn’t have to be that way.
Care partners must be recognized as a critical part of any caregiving journey because, without them, everything falls apart. We’re the sympathetic hand holders. This step in the process is all about recognizing and supporting the incredible care partners who devote their time, energy and love to ensuring elder loved ones receive the best possible care.
Honoring the Backbone of Care
As care partners, we wear many hats. We’re caregivers, organizers, advocates, cooks, housekeepers, drivers, and sometimes even medical coordinators. We pour ourselves into making sure our loved ones are safe, comfortable and well cared for.
But who takes care of us?
I’ve seen it too many times: care partners who are stretched so thin, running on empty because they’re trying to do everything on their own. It’s easy to put your own needs on the back burner. But if we’re not caring for ourselves, we can’t give the best care to our loved ones.
By acknowledging the incredible work you do, we can begin to build a support system for caregiving in a sustainable, happy and fulfilling way.
Support, Time Off & Resources: You Deserve It
If you’re like me, asking for help doesn’t always come easily. Being a care partner is one of the hardest jobs in the world – and the majority of us do it without pay. Many of us also work full-time jobs, raise families and balance countless other responsibilities on top of caregiving.
It’s no wonder we’re exhausted! We need help.
One of the most important aspects of life-care planning is making sure care partners have access to support, time off and resources. This isn’t a luxury – it’s a necessity. you can’t pour from an empty cup. You need breaks. You need self-care. You need to feel appreciated.
This includes everything from respite care to support groups connecting you with others who truly understand. There are also educational resources to help you navigate the complexities of caregiving, and self-care strategies that remind you to mind your physical and emotional health.
We’ve curated these resources to make caregiving more sustainable and to alleviate stress.
Avoiding Frustration & Overwhelm: It’s OK to Feel What You Feel
If you’ve been a care partner for any length of time, being overwhelmed is a way of life. Caregiving is emotionally challenging, and it’s OK to acknowledge that. In fact, it’s important to.
In this step of the life-care planning process, I encourage you to take a step back and reflect on your feelings. It’s OK to admit that this role is hard. It’s OK to feel tired, frustrated or even angry at times. What’s not OK is ignoring those feelings and pushing through without taking time to process them.
In my book, I’ve included space specifically for care partners to reflect on their own experiences. This isn’t just about making a plan for the care recipient – it’s about making sure you are supported, too. There are thought-provoking questions designed to help you express your frustrations, fears and needs along the uncertain path.
Empowering the Care Partner Team: A Collaborative Approach to Care
Caregiving must be a collaborative effort. Whether it’s involving other family members, friends or professional caregivers, building a team that can share the load is essential.
As a Board-certified Patient Advocate, I encourage open communication among the entire caregiving team. Everyone should be on the same page, understanding the needs of the care recipient and the care partners alike.
And that’s where “Because I Love You: My Book About Me” comes in again. The book serves as a guide to help families have those important conversations. It provides a place to document key information, from medical history and preferences to care wishes and end-of-life plans. This clarity allows everyone to be informed and involved, reducing the emotional burden on any one person.
Caring for the Care Partners: The Bottom Line of Life-Care Planning
The well-being of the care partner is just as important as the well-being of the person receiving care. As you move through this step of the life-care planning process, I invite you to reflect on your own caregiving journey. What support do you need? How can you take better care of yourself? How can your family or care team work together?
With the right resources and support, we can build a life-care plan that honors everyone involved. Because we care. Because you matter. And because you’re not alone.
If you need help, feel free to reach out to me directly at maureen@caregiversupportandresources.com.